Ok, spent a little more time thinking about this. You're asking me to remember conversations that happened in late 2012. Here's the gist.
My question to Bruce was two-fold, do I have to ground now, and, what do I have to do after I beat this thing?
The first question was geared towards answering the question of am I safe to fly even with cancer? My cancer was/is not blood borne; even if it kills me there will never be a case where it will spread to the brain, there is zero risk of incapacitation. So, I felt then, and still do today, that I could have continued flying for the three months that I waited for surgery. Needless to say, all four opinions that I solicited disagreed with my assumption, and I did not fly as PIC during those three months.
That necessitated the first story. This pilot had come to Bruce late in the process, after he had been denied a medical. As it was told to me, this guy did everything wrong. He didn't self ground, he didn't timely notify the FAA, he didn't submit the right paperwork, and, then argued with them regarding what they needed/didn't need. Bruce promptly fired him when he argued with Bruce. Never got his medical back.
Next, he explained the process of how we would get my medical back after I recovered. He explained that we would "take control" of this process from the FAA and proactively do everything necessary to ensure that the only function the FAA had was to rubber stamp what we already knew. Early on, it's important to note that Bruce didn't believe I'd get my medical back, and this process would show me that. Gladly, it didn't work out that way, and we put forth a process for others to use if they contract this type of cancer. I did mention that I talked with AOPA, and in 19 years of providing these services, there has been ONE other case of this, and it was way more mild than what I had. There was no roadmap for us, or the FAA, for that matter, to follow.
That lead to story number 2, how the pilot did not do this plan, and waited until the next renewal. That pilot did essentially what the advice recommends here. I can't remember what happened, but was always left with the feeling that he didn't get his medical back either, on some technicality. I am seeing Bruce in early June, flying to Peoria (God willing), if the tests come back well, so I'll ask him and follow up.
I do however, remember the third story, because that's what I did, and will continue to do until the day I can no longer fly.
I self grounded during the 3 months I waited for surgery. I then spent a month at one of the foremost cancer centers in this country (having and recovering from surgery), followed by 3 months completely off work, and another 3 months working limited part-time. During this time, I would not have wanted, much less been able to safely fly an airplane. The next 3 months after that were the most difficult.
I was mostly "recovered" and scans showed no evidence of anything, but my Doctor wanted a little more time to pass before giving the paperwork needed for the FAA. Once I got that, we went a step further. I retained an independent Oncology expert to render an opinion of my file BEFORE the FAA saw it and even knew that I had cancer. We asked him if I was safe to return to flying. He also happened to be the FAA expert that they refer outside cases to. When he agreed I was ready, my paperwork was submitted and I was approved within 48 hours. Why? Because we left the FAA no role in the process other than to rubber stamp what everyone already knew.
To me, THAT is how you deal with a bureaucracy. Not by refusing to participate, but rather, by showing them that there is only one possible decision. You can talk to me all day long about how our "rights and privileges" are being taken away. The bad news? They are already gone. We lost them years ago, while all these "experts" were ignoring them.
Richard, you said yourself that they could take away your medical for any reason at all. I agree with you. Just so you know, the "crowd" thinks that argument is a "non sequitur". Whatever. It's still true, and it happens.
I didn't leave them that option, and I left myself the option of sport pilot. I KNEW what was going to happen before I applied, because I took that process (that the 'crowd' claims I don't need to know about), and jammed it down their collective throats and made their decision easy, and risk free (the risk free is the important part for a bureaucrat).
Guidance from Bruce was/is CRITCAL to me and I'll never approach the FAA unrepresented again. All the bravado and bluster in this thread is just that. It is the ranting of the uninformed who think they know so much that they can no longer be taught anything at all.
These other paths "might" have worked, but there was always uncertainty and follow up questions. It put sport pilot privileges at risk, also (why do that unnecessarily?). I had one follow up question from the FAA - "did you operate as PIC after your diagnosis until your medical expired"? I answered NO and never heard another word about it. I have no idea what, if anything, would have happened, and quite frankly don't care.
That's the best summary I can give, and way more info about me than I really want, but none of this makes sense without appropriate context.